Description

Course Directors: Dr Malobi Ogboli and Victoria LynneLecturers: BCH EB multi-disciplinary team and patients8.30 Registration and coffee9.00 Introduction:Dr Malobi Ogboli, Consultant Dermatologist9.30 Mouth and dental care in EB:Dr Victoria Clark, Consultant Paediatric Dentist10.00 Paediatric aspects of EB: Dr Helen Goodyear, Consultant Pediatrician10.30 School and transition: EB Nursing Team11.00 Coffee and poster quiz (Differential diagnosis of EB in the neonate)11.15 Quiz answers and management of skin: EB Nursing Team12.00 Medical and surgical aspects of nutrition in EBDr Wolfram Haller, Consultant Paediatric GastroenterologistDr Giampiero Soccorso, Consultant Paediatric SurgeonMrs Rosie Jones, Paediatric DietitianMrs Elaine Sexton, Nutritional Clinical Nurse Specialist1.00 Lunch1.30 Eyes in EB:Mr John Ainsworth, Consultant Paediatric Ophthalmologist2.00 Dealing with pain:Dr Mark Hunter, Consultant Paediatric Palliative Care2.30 Anaesthesia in EB:Dr Barry Lambert, Consultant Paediatric Anaesthetist3.00 Hand surgery in EB:Ms Andrea Jester, Consultant Paediatric Plastic Surgeon3.30 Tea3.45 Hands, feet and maintaining function:Ms Hannah Garratt-Kirk, PhysiotherapistMr Mark O’Sullivan, PodiatristMs Kiri Irani, Occupational Therapist4.30 Cultural Issues:Miss Myra Ali4.50 Patient Panel5.30 CloseCost (includes course materials and refreshments) £100No charge to BCH staff