“Everyone, including people with dementia, approaching the end of life, should experience high quality, compassionate andjoined-up care.” Prime Ministers Challenge on Dementia 2020“The Challenge’s ambition is for every person with dementia, and their carers and families, to receive high quality andcompassionate care from diagnosis to end of life; with consistent access and care standards across the country. It aimsfor people with dementia to be involved with their care decisions, and for a focus on their wellbeing and quality of life tounderpin the commissioning and providing of dementia services.” Dementia 2020 Challenge, UK Government, February 2019“The number of people in the UK with dementia is increasing, with 1 in 3 people over the age of 65 now dying withdementia.” National Council for Palliative Care“Many people do not perceive dementia as a terminal condition, and yet the life expectancy for someone with dementia in acare home is the same as for someone with metastatic breast cancer. Firstly, we know that people with dementia do poorlyin terms of end of life care but have many of the same symptoms in their last days of life. A particular issue is people in carehomes – the majority of whom have dementia – being admitted to hospital for the last few hours or days of their life. Thesecond reason is mental capacity, in that there is a fear that people in the later stages of dementia lack capacity and so thereis reluctance in staff to be more proactive. Yet it is precisely because people with dementia will ultimately lose capacity thatthe opportunity to offer advance care planning at an earlier stage must not be lost. Dementia is now considered the leadingcause of death in England and Wales.” NHS EnglandThis conference focuses on improving end of life care for people with Dementia. Dementia is now the leading cause of deathin England and Wales. In England it is estimated that around 676,000 people have dementia. In the whole of the UK, thenumber of people with dementia is estimated at 850,000. It is therefore essential that we focus on improving end of life care forDementia. The conference will demonstrate, through national updates and practical case studies how you can improve end oflife care for people with dementia in your service. This event will update delegates on the new NICE National Clinical Guidelinefor Dementia and implications for end of life care. The NICE Guideline Dementia: assessment, management and support forpeople living with dementia and their carers published in 2018 has specific recommendations on Palliative Care in Dementiaincluding:• From diagnosis, offer people living with dementia flexible, needs-based palliative care that takes into account howunpredictable dementia progression can be.• For people living with dementia who are approaching the end of life, use an anticipatory healthcare planning process.• Involve the person and their family members or carers (as appropriate) as far as possible, and use the principles of bestinterest decision-making if the person does not have capacity to make decisions about their care.• For standards and measures on palliative care, see the NICE quality standard on end of life care for adults.• For guidance on care for people in the last days of life, see the NICE guideline on care of dying adults.• For guidance on best interests decision-making, see the NICE guideline on decision-making and mental capacity.• Encourage and support people living with dementia to eat and drink, taking into account their nutritional needs.• Consider involving a speech and language therapist if there are concerns about a person’s safety when eating and drinking.• Do not routinely use enteral feeding in people living with severe dementia, unless indicated for a potentially reversiblecomorbidity.NICE 20th June 2018